EspeRare is present at the Rare Disease Day at NIH 2023
EspeRare and its partner Pierre Fabre Group will participate in the Rare Disease Day at NIH on 28th February 2023, presenting their ground-breaking clinical study for families with XLHED. The virtual booth will give the possibility to attendees from various parts of the world to connect and find out more about the new treatment paradigm and engage with the speakers.
National Institutes of Health (NIH), through this event aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments. The event is free and open to the public. Registration is required prior to attending: https://hopin.com/events/nih-rare-disease-day-2023/registration