Advancing treatments for rare diseases together

January 2023

10Jan

Repurposing drugs in a novel way and a call for proposals for advocacy organizations

In the context of therapy development webinar series launched in November 2022 by Advocacy Leaders: Genetic Alliance, EspeRare Foundation and Luna, EspeRare will take a lead at the third webinar taking place on 18th January 2023. The Foundation will present how shelved drugs can accelerate the development of life-changing therapies and lay out the practical examples based on its programmes in X-linked Hypohidrotic Ectodermal Dysplasia and Duchenne. During this webinar, a call for proposals will be launched and EspeRare will encourage its audience to engage and potentially co-develop through a partnership a new therapeutic opportunity for its community addressing high unmet medical needs in rare diseases. Finally, Luna will run two final webinars to demonstrate major features of its Community Driven Innovation methodology (15th Feb) and its innovative registry and studies platform (1st Mar).

Here is the link for the survey mentioned: Therapy Development - Call for Proposals. Deadline for submissions is February 1st 2023.

Webinars are open to public. For more information on the series of webinars and registration please visit the link.

03Jan

NeoCare featured in the latest issue of Le Micromécanicien

Neocare, CHD, Foundation

Miniaturization and precision at the service of life. 

The development of medical devices requires not only the knowledge of medical experts, but also engineers and innovative technologies. The journal Le Micromécanicien, in its December edition, published an article on NeoCare - an innovative medical device aimed at protecting the heart and lungs of newborns with heart defects.
 
A great opportunity for a medtech to finalize the development, production and commercialization of NeoCare for congenital heart defects and to extend this technology to many other indications for which the control and regulation of vessel pressure is necessary, for example liver transplantation or major liver resection. 

To read the full article go to pages 30-31 on the following link: https://lemicromecanicien.ch/

About Micromécanicien:

Le Micromécanicien is a specialized, technical and industrial magazine dedicated to microtechnology. Microtechnology applies to a field that permeates practically the entire industrial sector, particularly in French-speaking Switzerland, with a strong presence in the Jura Arc.