Advancing treatments for rare diseases together

Sharon Terry, EspeRare's President and CEO of Genetic Alliance receives the 2021 ASHG Advocacy Award

15Jul

The American Society of Human Genetics (ASHG) rewards the excellence and achievement in applications of human genetics for the common good. This prestigious price honors Sharon's visionary work in building public awareness, advancing genetic research, and striving for the genetics inclusion into healthcare systems.

"I am honored by this recognition from ASHG - I am the first lay person to receive their Advocacy Award and I receive it on behalf of all of us in families and communities who strive daily to make life better for all who suffer", has commented Sharon.  

Motivated by providing a better future for her children diagnosed with rare genetic condition (PXE), she became a game changer in the healthcare system and initiated a new model that would encourage accelerated academic collaboration. She paved the way for patient empowerment in research and drug development.

For more information on the award, follow this link.

American Society of Human Genetics (ASHG), founded in 1948, aims to advance human genetics and genomics in science, health, and society through excellence in research education, and advocacy. For more information, visit: http://www.ashg.org.