Advancing treatments for rare diseases together

June 2024

19Jun

On June 25th 2024 starting at 9AM, EspeRare, a pioneering nonprofit biotech organization, will be featured at the Fongit Café Croissant event at Campus Biotech. During this session, EspeRare's Executive Director and Co-Founder, Caroline Kant will present the organization's latest developments and answer questions from attendees.

https://www.fongit.ch/event-details-registration/cafe-croissant-at-campus-biotech-1-2

About Fongit: For over three decades, Fongit has been de-risking the entrepreneurial journey and supporting entrepreneurs with the expertise, resources, and financing they need to transform innovative ideas into sustainable companies. As a private, non-profit foundation supported by the State of Geneva, Fongit’s mission is to convert innovation into social and economic value in the Geneva region.

About the Event: This monthly event gathers life sciences entrepreneurs from the community, providing a platform to discover the latest happenings in the Geneva ecosystem. Attendees will have the opportunity to hear directly from entrepreneurs, learn about their journeys, and expand their professional networks over coffee and croissants.

13Jun

EspeRare is participating in the 21st World Congress in Fetal Medicine, happening in Lisbon, Portugal, from June 23rd to June 27th, 2024.

We are excited to showcase our groundbreaking prenatal Edelife clinical study and to delve into the latest advancements in the field of prenatal medicine. This congress provides an exceptional platform to exchange insights and collaborate with leading experts dedicated to enhancing fetal health and care.

If you are attending and would like to exchange ideas or meet with the EspeRare team, please connect with Agnes Jaulent and Sebastien Mazzuri, who will be on-site at the congress. For more information about the congress and to register, please visit the following link: https://fetalmedicine.org/courses-n-congress/fmf-world-congress

EspeRare Foundation and the Pierre Fabre Group run a pivotal clinical trial, Edelife, aimed at confirming the safety and efficacy of ER-004, a prenatal treatment for XLHED (X-linked Hypohidrotic Ectodermal Dysplasia), a rare and debilitating congenital disease. Upon positive results, the study could lead to the first approved in-utero treatment for XLHED by 2026.

For more information on the Edelife clinical trial please follow the link: XLHED Ectodermal Dysplasia ER004 Clinical Study (edelifeclinicaltrial.com) 

Fetal Medicine

12Jun

 Our R&D Director, Florence Porte-Thomé was recently featured in an engaging interview on the 'Objectif croissance' program, where she presented EspeRare's "venture philanthropy" model and cutting-edge innovations in drug development for rare diseases. The discussion was vibrant and inspiring, highlighting EspeRare's commitment to transforming lives through science.

More insights and the full interview coming soon.

BFM