EspeRare is delighted to announce our return to the National Foundation for Ectodermal Dysplasias (NFED) Annual Family Conference, taking place from July 7-9, 2024, at Grand Hyatt, Washington, D.C. We will be presenting our EDELIFE trial for X-linked Hypohidrotic Ectodermal Dysplasia (XLHED) Edelife | XLHED Clinical Trial I For Pregnant Women (edelifeclinicaltrial.com), including the opening of a new clinical site in the US, in Los Angeles. The Principal Investigators in the US, Prof Dorothy Grange and Prof Ophir Klein, will also be present and available for discussion.
This year, the NFED is having a Day on the Capitol Hill, on Monday, July 8, to advocate for and make a difference for those living with ectodermal dysplasia and other congenital anomalies. Pierre Fabre and EspeRare are proud to be standing with the NFED.
For more details on the event, please visit the NFED Stand Together 2024 event page.
