EspecRare is pleased to announce its collaboration with Twinkle, an association founded in France, around a common goal: to better support children and their families facing the end of life through the Twinkle Box project, a toolkit designed for pediatric palliative care teams.
At the heart of the Twinkle Box are three children's books written by Ewen and Michaela Sedman.
The first two address environmental issues such as light pollution and melting glaciers. The third, “Alphi and the Star Factory,” features the same characters to open up a secular and accessible dialogue about the afterlife, based on scientific concepts related to molecules, energy, and the laws of physics. This stories’ progression allows children to become familiar with the characters before tackling more sensitive topics around the end of life.
The kit was designed in close collaboration with Swiss, French, and German psychologists to support children and their loved ones during end-of-life care and the grieving process.
Through this project, EspeRare and Twinkle aim to equip healthcare teams with practicaltailored tools to support children and their families with kindness, respect, and compassion.
The TwinkleBox is available in French, German, and English, and is distributed free of charge to paediatric palliative care providers in Switzerland and internationally.
This partnership is another example of EspeRare’s mission-driven commitment to deliver tangible human impact, closely aligned with the needs of patients, families, and caregivers.
For more information, join the project or request a Box, visit the webpage
