Advancing treatments for rare diseases together

Sharon Terry – the first woman who became the Chair of the Board on Health Sciences Policy at the NASEM

24Sep

The National Academies of Science, Engineering, and Medicine (USA) appointed Sharon Terry, EspeRare’s President and CEO of Genetic Alliance, to lead the Board on Health Sciences Policy. In her new role, Sharon will share her vast experience and guidance on promoting health education and strenghtening research and biomedical sciences at large. 

Her expert advice on some of the most pressing challenges such as increasing public awareness on ethical, legal, and policy-related issues in genetics will add incremental value to the overall work of the Health and Medicine Division at the National Academies of Science, Engineering, and Medicine and healthcare system as such.

As a SHG 2021 Advocacy Award winner, she is the well-chosen nominee to face the goals laid in front of the Board.

For more information about the Board on Health Sciences Policy follow this link.