Advancing treatments for rare diseases Together

Our mission and vision

EspeRare is a nonprofit organisation established in Switzerland in 2013. It is recognised to be operating in the public's interest.


A world in which patient engagement, good science, pharmaceutical excellence and health authorities come together to address the medical needs of rare diseases patients, ultimately alleviating the healthcare burden of their conditions.


In collaboration with patient groups and other key stakeholders, we uncover the potential of existing molecules to address severe therapeutic unmet needs in rare diseases. Through the identification and validation of these therapeutic opportunities we address the translational gap in rare disease drug development. Thus, giving better chances for existing drug to reach these patients.



  • “It is time to renovate and accelerate the discovery and development of drugs for rare diseases. EspeRare is an essential player in the innovative, collaborative system that will be created to make a difference in this world.”
    Sharon Terry
    EspeRare President, CEO of Genetic Alliance & Board Member of IRDiRC

Watch Caroline Kant talk about EspeRare

Rare diseases

Rare diseases are a major healthcare burden: between 8-10% of the global population is affected



Throughout our activities we are committed to raise and use public and private funding, in a socially responsible and nonprofit manner.