As advocacy leaders, Genetic Alliance, EspeRare and Luna are joining forces to support the active participation of advocacy community in therapeutic development. To this end, over the next 4 months, Genetic Alliance will moderate a Webinar Series about the drug development process. The first two webinars (29th Nov & 14th Dec) will focus on presenting the NETS, a dynamic, interactive map that intends to provide a realistic view of drug development, and its associated resources helpful for understanding and executing that process. On January 18th, EspeRare will present how shelved drugs can accelerate the development of life-changing therapies and lay out the practical examples based on its programmes. During this webinar, a call for proposal will be launched and EspeRare will commit its expertise and support to an advocacy organization to co-develop a new therapeutic program addressing high unmet medical needs in rare diseases. Finally, Luna will run two final webinars demonstrate major features of its Community Driven Innovation methodology (15th Feb) and its innovative registry and studies platform (1st Mar).
For more information on the series of webinars and registration please visit the link.
