Advancing treatments for rare diseases together

October 2023

12Oct

EspeRare, a pioneer in prenatal treatment advancements, announces that its co-founder and executive director, Caroline Kant, will be featured as a keynote speaker at the Geneva University Hospitals (HUG) Innovation Day on October 19, 2023.

The spotlight of Caroline’s keynote will be "EspeRare: a collaborative model at the forefront of prenatal treatment." Attendees will be given an insightful glimpse into the groundbreaking work EspeRare is undertaking, particularly surrounding ER-004 in X-Linked ectodermal dysplasia. This program, rescued and championed by EspeRare, is poised to become the first-ever treatment that addresses a genetic disease before birth, setting a groundbreaking precedent in medical innovation and offering hope for countless genetic conditions with debilitating perinatal symptoms.

About HUG Innovation Day

The HUG Innovation Day, now in its 17th year, is a platform that showcases innovative health projects. As an established event, it gathers innovators, allowing them to network, exchange experiences, and present transformative ideas within the healthcare sphere. Awards, including the Innovation Award, a Jury’s Favorite, and audience-driven prize, will highlight the day’s presentations. A startup award will also aim to support the ambitions of emerging healthcare entrepreneurs.

For those interested in attending or learning more about the HUG Innovation Day 2023, additional details can be found at: https://www.hug.ch/centre-linnovation/journee-linnovation-2023.

For more about EspeRare and ER004 in XLHED, visit ER-004 Programme in X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED) | EspeRare Foundation

11Oct

We are delighted to announce the release of our 10th Anniversary Highlights Video, which encapsulates the essence of our remarkable journey over the past decade, as well as our ambitious vision for the future. As we take this opportunity to reflect on our journey, we acknowledge the significant contributions of our public and philanthropic donors, scientific community, and the unwavering support of our valued rare disease ecosystem. We are confident that through continued collaboration, we can achieve even greater progress in paving the path towards a more equitable future.

Click on the photo to view the video and be part of the celebration:

EspeRare's 10th Anniversary Highlights