Advancing treatments for rare diseases Together



It is with great pleasure that the EspeRare foundation welcomes a new member to its board, Mr. Denis Mortier. Denis brings core business and financial strategy acumen to the board’s expertise. His addition will support the current scale-up of EspeRare’s operations and R&D activities in order to reach even more children suffering with rare diseases.

Denis has been recently closely involved with EspeRare and has already had a considerable impact on shaping the foundation’s growth strategy. Denis has an outstanding track record in building financial strategies, and we are honoured and delighted to include him on our board. EspeRare will leverage on his wealth of experience to further its growth, and ultimately to enable EspeRare to better deliver on its mission” commented Caroline Kant, executive director.

Denis has held senior and executive positions within several private finance sector companies.  Amongst others, Denis has served as a partner of Coller Capital Ltd (UK). He was also appointed on the executive committees of both the Atomic Energy Commission (CEA, France) and of Credit National (France). He was the founding CEO of CEA Industrie and of Financière Saint Dominique. He served as an executive officer for the World Bank Group, as Chairman for the European Private Equity and Venture Capital Association (EVCA), as well as vice chairman of NASDAQ Europe. He also served on advisory boards and investment committees for multiple venture capital funds.
Denis completed his undergraduate studies at the “Ecole des Hautes Etudes Commerciales” (HEC) in Paris and also holds an MBA from Stanford Business School.



EspeRare's Annual Report for 2016 has just been published.
The Annual Report highlights the foundation's achievements for 2016 and its financial statements.
Click here to read our new Annual Report.



For its issue "Special rare diseases", the journal Biotech Finances has chosen to feature EspeRare's CEO, Caroline Kant.The interview summarises Caroline Kant's career path as well as EspeRare's aims, realizations and business plan, thereby informing finance and biotechs specialists of EspeRare's unique business model.


The EspeRare foundation has been presented by Sharon Terry at the International Rare Diseases Research Consortium (IRDiRC) in Dublin, on April 16th.

About IRDiRC: The International Rare Diseases Research Consortium (IRDiRC) was initiated by the European Commission and the US National Institutes for Health Research and launched in April 2011 to foster international collaboration in the rare diseases field. IRDiRC will team up researchers and organizations investing in rare diseases research in order to achieve two main objectives, namely to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases by the year 2020.

View the programme

 View conference report


Today we are proud to announce the launch of the EspeRare Foundation, a nonprofit organisation set up by three Merck Serono employees.

Geneva, Switzerland, April 15, 2013 – Merck Serono, a division of Merck, Darmstadt, Germany, today announced the launch of the EspeRare Foundation, a nonprofit organization set up by three Merck Serono employees, in the framework of the Merck Serono Entrepreneur Partnership Program (EPP). Merck Serono will donate an initial €2.8 million funding to the EspeRare Foundation. In addition, Merck Serono will transfer the rights of rimeporide, a compound previously developed for heart failure by Merck. The Foundation will investigate this compound in Duchenne Muscular Dystrophy (DMD), a lethal genetic rare disease affecting 1 in every 3 600 males.

Read the full press release here