Pour faire avancer le traitement des maladies rares ensemble

Foundation

20avr

Le Rapport Annuel d'EspeRare pour 2016 est disponible

Foundation, Esperare, Annual report

Le Rapport Annuel d'EspeRare pour 2016 vient juste d'être publié. Le Rapport Annuel présente les activités conduites par EspeRare au cours de l'année écoulée ainsi que les comptes de la fondation.  

Pour le lire (en anglais), cliquez ici.
16avr

Présentation d'EspeRare à l'IRDiRC

Foundation, Esperare, Sharon Terry, IRDiRC

The EspeRare foundation has been presented by Sharon Terry at the International Rare Diseases Research Consortium (IRDiRC) in Dublin, on April 16th.

About IRDiRC: The International Rare Diseases Research Consortium (IRDiRC) was initiated by the European Commission and the US National Institutes for Health Research and launched in April 2011 to foster international collaboration in the rare diseases field. IRDiRC will team up researchers and organizations investing in rare diseases research in order to achieve two main objectives, namely to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases by the year 2020.

View the programme

 View conference report

15avr

Lancement de la fondation EspeRare

Foundation, Esperare, Rare diseases

Today we are proud to announce the launch of the EspeRare Foundation, a nonprofit organisation set up by three Merck Serono employees.

Geneva, Switzerland, April 15, 2013 – Merck Serono, a division of Merck, Darmstadt, Germany, today announced the launch of the EspeRare Foundation, a nonprofit organization set up by three Merck Serono employees, in the framework of the Merck Serono Entrepreneur Partnership Program (EPP). Merck Serono will donate an initial €2.8 million funding to the EspeRare Foundation. In addition, Merck Serono will transfer the rights of rimeporide, a compound previously developed for heart failure by Merck. The Foundation will investigate this compound in Duchenne Muscular Dystrophy (DMD), a lethal genetic rare disease affecting 1 in every 3 600 males.

Read the full press release here