Advancing treatments for rare diseases Together

EspeRare’s president, Sharon Terry, gave a TedMed talk on patients empowerment


EspeRare President’s TedMed talk in now online.

In this inspiring speech, Sharon Terry shares her personal story about how, since science didn’t understand her kids’ rare disease, she and her husband decided to study it themselves. Thus they paved the way for patient empowerment in research and drug development.