Pour faire avancer le traitement des maladies rares ensemble

Our mission and vision

EspeRare is a not-for-profit organisation established in Switzerland in 2013. It is recognised to be operating in the public's interest.

 

OUR VISION

We dream of a world in which patient engagement, good science, pharmaceutical excellence and health authorities come together to address the medical needs of rare diseases patients, ultimately alleviating the healthcare burden of their conditions.

 

OUR MISSION

In collaboration with patient groups and other key stakeholders, we uncover the potential of existing therapies to address severe therapeutic unmet needs in rare diseases. We aim to give children and their families, affected by the orphan diseases, a fair access to life-changing therapies and a new hope for the future. 

 

  • “It is time to renovate and accelerate the discovery and development of drugs for rare diseases. EspeRare is an essential player in the innovative, collaborative system that will be created to make a difference in this world.”
    Sharon Terry
    EspeRare President, CEO of Genetic Alliance & Board Member of IRDiRC

Watch our Founder talk about EspeRare

Film created by Perle Productions

Rare diseases

Rare diseases are a major healthcare burden: between 8 and 10% of the global population is affected

 

Funding

Throughout our activities we are committed to raise and use public and private funding, in a socially responsible and nonprofit manner.

Useful links